If it is true that a picture paints a thousand words, I truly believe that this is one of the best pictures that I’ve seen where that rings true for me.
This picture was taken for Time Magazine by Ben Baker. It was inserted into an article regarding Fox’s fight for research for Parkinson’s, several years back.
I was looking up articles on Fox, always fascinated with him as I watched him grow and go from Alex in the hit TV show, Family Ties, to the star in the movie trilogy, Back to the Future to now – living and breathing a disease that changed his life forever. And mine.
Michael J Fox (MJF) was diagnosed at the age of 30 and while I was offically diagnosed with PD at the age of 45, it actually began at 31 or before, when it was misdiagnosed as Lupus, with the possibility of it “becoming a more definitive diagnosis of something else”. I ‘waited’ years through Lupus meds and other ‘ill-definitive’ symptoms for the correct diagnosis.
Looking at this picture of Fox, I see myself so clearly. Looking like a normal 47 year old human being, yet in a corner with a disease, you receive a diagnosis and you’ve made a drastic turn in the path of your life that was unexpected. You are young and yet you feel so much older than you look and – at the same time, you can look so much older than you feel.
Michael’s hand holds him balanced as he sits on the floor. As I look at his hand, I see stiffness, rigidity and a hand that has a mind of its own. It looks like a hand that has been a victim of a stoke to me, but as far as I know, he hasn’t had one of those. He has Parkinsons Disease and his hand looks like mine feels.
I sometimes feel lost in a corner, lost in the world with a disease I’m not quite sure what to do with . A disease that leaves me sometimes wanting to hide in a hole. Tired, hurting, uncertain – wanting to find refuge where someone might understand, at least for supports sake and not pity. I am looking for a corner where a friend might be found.
I look at this picture of Michael and I see strength and determination. Qualities I hope to possess. The quality of strength that endures and fights and a determination that presses on and never quits or gives up. A calm and gentleness that says “I understand” and determines that to quit will never be an option.
And yet, the tiredness that comes with PD is obviously evident in this photograph. A tiredness that says the pain is real. The medications are tiring. The fight is draining.
The good, the bad, the ugly. It’s all there. In that picture. The picture of a thousand thoughts. A thousand feelings. A thousand words. A thousand hopes.
