
After the winter, God ALWAYS sends the spring. ALWAYS.
We were traveling toward downtown Capitola. Gayle’s Bakery – specifically. The place in town. The place for a great Chocolatine. Ham and Cheese Croissant. Bear Claw. Raspberry and Cream Cheese Danish. All fresh. All scrumptiously delicious. The best you’ll ever taste. I now think I am very hungry…
We (my daughter Tamara and her friend and maid of honor, Ashley) had spent the day before looking at wedding dresses for my daughter, who just happens to be getting married in June to a wonderful guy – my future son in-law. My daughter was driving and Ashley was sitting in the back seat. We were making a pit stop at Gayle’s that morning before going to look at bridesmaids dresses.
As we pulled into the parking lot, my daughter and I were having one of those discussions. You know – the kind where she tells me something and I’m supposed to know about it because she’s told me before. The problem is – I have Parkinson’s disease and quite often, I have been known to forget things. I can blame it on the disease, because besides it being a movement disorder, where we loss of movement plays a major role (among so many other things I won’t go into), a person with PD can also suffer from memory loss. However, the good thing is we may not know memory loss can be an issue because we may not remember we have PD. Wouldn’t that be great for a day!
The bad thing is – everyone around you remembers what they told you (or thinks they do) and you are the one who takes the fall because it’s easy to blame a person with PD, because – not only do they question themselves constantly as to whether they remember the situation correctly or is this is just another time the other person feels a great need to be right?
Anyhow – my daughter had told me something, which I had legitimately forgotten and she wasn’t trying to be right. She put the car into park and knew when I turned my head to the side, I was trying to hide the onset of my eyes watering. Ashley got out and Tamara, my daughter, asked her to give us a few minutes, which she cheerfully agreed to and headed into a shop depicting a Paris theme – a perfect shop for exploring decorating options for the French Country theme my daughter was going for in her wedding.
Tamara turned off the engine. She was frustrated. So was I. This was supposed to be a happy day. A wonderful reason to be going to Gayle’s. To celebrate a glorious, once in a lifetime event. But I had forgotten something. Something important. I might be able to tell you what it was, but I honestly can’t remember what it was…
Now – let me back up a bit.
I have been writing on this blog – specifically targeted re: my journey with Parkinson’s disease – since 2007. I have been writing about my journey of DP, er PD (I’ve often wondered if PD is to blame for dyslexia in later stages!? – comment?) since the ripe old age of 32, when I was misdiagnosed with Lupus.
I have – or so I thought – dealt with the five, or seven, or ten (depending on how quick you want to get through them I suppose and which book of expertise you’re reading on the subject) stages of grief over this not-so-little monster. For the sake of time, here’s a summary (and believe me, this really is condensed):
The Infinite Stages of Grief…
These stages/suggestions were found while conducting a Google search on the stages of grieving. I have compiled the highlights. Some are honestly crazy in terms of how they were worded, but hey – I didn’t come up with them (and my input is italicized).
As I said earlier, there are numerous techniques/stages of grieving. My findings were that the least amount of stages begin with four and after compiling the ones I did find (and there were jumbles more), I ended with a total of 21 stages. Each stage is highlighted and what was said about them is defined below the stage title.
SHOCK & DENIAL –
You may have numbed disbelief and deny the loss. Shock provides protection and may last for weeks. “I’m fine,” is a noted response. Denial is replaced with awareness of possessions left behind after you die. (Someone really did write that.)
PAIN & GUILT -
Shock is replaced by these two emotions (pain and guilt). “It is important to fully experience the pain.” You may have guilt over things you did or didn’t do while you had time before ‘the loss’.
ANGER AND BARGAINING –
Frustration becomes anger and you want to lay the blame for your loss on someone else. Please try to control this.
“Why me?” comes into play. Due to anger issues, the individual is difficult to care for due to rage and envy. “I’ll do anything. Just get me out of this,” they say to God.
DEPRESSION, REFLECTION, LONELINESS –
About the time you’re moving on with your life, you begin to ask ‘Why me?’ In this stage, you realize the magnitude of your loss and get depressed. You isolate yourself. Focus on on the past. Feel empty. Sense despair. Feelings of “I’m so sad.”
THE UPWARD TURN -
Calmness sets in. You are more organized. Depression begins to disappear. (And this was what stage? The upward turn? Depression is going upward?)
RECONSTRUCTION & WORKING THROUGH -
Your mind starts working again. You seek solutions to problems regardless of (and perhaps because of) your loss. Don’t try to go over it, go through it. (This stage was repeated in two different stage articles.)
ACCEPTANCE & HOPE -
Learn to accept and deal with reality. You can never return to the “carefree, untroubled YOU that existed before this tragedy, but you will find a way…”. (How encouraging! Not.) Accept the pain. If you cannot accept it, try tolerating it.
“It’s okay.” “You’re gonna make it.” Come to terms and accept your mortality.
ACKNOWLEDGE THE IMPORTANCE AND POWER OF YOUR DIAGNOSIS -
Move through it. (Again, this step was found twice.)
HONOR YOUR GRIEF EVERY DAY -
Set up a sanctuary in-house or in nature so you may open fully to your grief for 10-20 minutes each day. (Say what?!?)
ADDRESS UNFINISHED BUSINESS -
You can address this stage however you like.
CREATE NEW LIVING PATTERNS -
Resolve to get on with your life.
EXPLORE THE DIRECTION AND QUALITY OF YOUR NEW LIFE -
This stage will bring new perspectives, directions and choices.
DON’T PRESSURE YOURSELF TO GET BACK TO NORMAL -
LET YOUR FRIENDS KNOW WHAT YOU WANT AND NEED FROM THEM -
Let them know how they can help. Meals, errands, back rubs, walking partner, checking up on you. Let them know you may be withdrawing during this time. Let them know what they do that is not supportive. Encourage them to educate themselves about what you’re going through. Remind them your grieving will take a long time.
ACKNOWLEDGE THE ANNIVERSARY OF YOUR LOSS -
Do something to commemorate the date. Go easy on yourself. You may still be depressed.
CELEBRATE THE CHANGES AND NEW PERSPECTIVES -
FIND SOMETHING TO DISTRACT YOU FROM YOUR LOSS, ESPECIALLY SOMETHING THAT WILL MAKE YOU LAUGH -
ASK YOURSELF HOW YOU ARE FEELING -
Stop from time to time throughout your day and ask this question. Get in touch with your feelings, not with what your head is telling you. Take a deep breath throughout the day and ask yourself how you are feeling. Then feel the answer. You might discover you’re feeling pretty good.
BREATHE -
There are several ways to breathe, but all require taking a breath from the diaphragm – breathing from the belly. Focus on the breath and let it bring you to the now – where relief is found. For just one moment, focus on your breath.
JOURNAL -
Don’t edit, just write. Words are powerful and will lend to healing.
LAUGH -
Balance your emotions with a ha-ha or hee-hee or a ho-ho. Even if you don’t feel like it. Create the sound of laughter. It raises your vibration. (Is that anything like shaking – as in tremors?)
I don’t think I had a problem with the denial stage. I was actually relieved to have it diagnosed correctly and begin to get some things under control. I also would say I didn’t experience the pain or guilt, unless you count an obsession of bleach to sanitize stuff and inadvertently inhaled too many fumes and fried my dopamine supply. That would be the guilt right there. I journaled and still do. I he-he and ha-ha and leave the ho-ho’s up to Santa. As far as the breathing and asking myself how I’m feeling, well – let me just say – I’ll leave that to someone else to try and please let me know how that goes for you.
And the stage pertaining to honoring your loss and/or letting your friends cater to and pamper you – well – what can I say? Send me a comment and let me know how that goes and how your friends react after you ask if you can give a copy of the scheduled back rubs you have for them to do for you.
What I haven’t mentioned yet, is the stage of anger. I’ve never really gotten upset over my diagnosis,perhaps because – perhaps again – I felt relief more than anything. But what about anger?
Back to the car in front of the French store, across from Gayle’s Bakery. Tamara and I sat in the car as she apologized for making me cry, but the thing was – and I told her so – I wasn’t crying over anything she had said or done. I was sobbing because I was angry. Angry that I had Parkinson’s disease. I didn’t say or think, “Why me?” or anything like that. My anger was focused on what this disease has taken and will only continue to take – the ability to move freely without pain or stiffness, my memory, positive state of mind, and more. I have no desire to be grateful for what it gives – shaking, restless legs, dystonia, dyskinesia, depression, and more.
“I want the old me back,” I cried. “I don’t want the me I am now.”
Tamara cried with me. “I want the old you back too.”
That didn’t really make me feel better (did she not read the stages of grief – the part about doing and saying things to help me?), but I knew what she meant.
I find it consoling that God knows what we need before we even ask. For example, when I got home that day, I turned to a page in a devotional I have and it read (paraphrased):
“Be still in My Presence, while I tell you of My Love for you. There is nothing more powerful than My Love. You are constantly aware of limitations, but there is no limit to My Love. It fills all of space, time, and eternity.
“Now you see through a glass, darkly, but someday you will see Me face-to-face.
Then you will be able to experience fully how wide and long and high and deep is My Love for you. …the knowledge of My loving Presence is so sufficient to carry you through each day.”
The same day, I was doing my regular Bible reading and picked up where I had left off…
“Do not be afraid. Stand firm and you will see the deliverance the Lord will bring you today. …the Lord will fight for you: you need only to be still.”
Coincidence? I hardly think so. One begins with ‘be still’ and the other ends with ‘be still’. While I am aware of my limitations, there is no limit to God’s love for me and His comfort and care. While I cannot see what is ahead of me, looking ahead to experiencing God fully will be sufficient to carry me through each day. Therefore, I need not fear. I need not give in to anger or the ugliness it can bring – bitterness and pain.
And then, I need not fear the future. While I am told to be still, I am not told sit and wait – I am to – stand firm. And He will deliver me. He will fight for me. My part? To be still.
He will bring you through the grieving process. He will deliver you from the pain. The loss.
He will.
He will.
You don’t have to he-he or ha-ha or ho-ho. You don’t have to manipulate your friends or experience be in the moment and experience a breath.
All you have to do… be still.
“We find a place for what we lose.
Although we know that after such a loss
the acute stage of mourning will subside,
we also know that we shall remain inconsolable
and will never find a substitute.
No matter what may fill the gap,
even if it be filled completely,
it nevertheless remains something else”.
— Sigmund Freud (1961)